Survey Results

Here are the results

The results of the PainSTORY survey demonstrate that chronic pain has a significant impact on patients’ quality of life, highlighting the need for improved pain management.

Despite 1 year of treatment...

  • 6 in 10 patients feel that chronic pain controls their life.
  • 95% of patients report they are suffering moderate to severe pain.
  • 19% of patients feel that their pain is getting worse.

And yet...

  • 64% of patients believe that they are on the most appropriate treatment.
  • Over half feel that everything possible is being done to help them.
  • Only 12% are being prescribed a strong opioid medication to control their pain.

A 1-year journey through pain

By the end of the 12-month survey, 95% of patients undergoing treatment reported being in moderate or severe pain, with 46% of this group suffering severe pain by the end of the year. For the majority of patients, pain levels had not improved dramatically despite medical intervention for 1 year.

Although patients’ pain remained relatively static throughout the year, daily symptoms of pain fluctuated, leading to frustrating consequences.

Impact of pain on daily life

The study findings highlight the significant impact that chronic pain has on the daily lives of patients. Over half of patients still feel pain has a ‘huge’ impact on their daily life at the end of the study, with 6 in 10 reporting that chronic pain controls their life.

8 in 10 respondents confirm that their pain has an impact on their quality of life, with:

  • 64% reporting problems walking.
  • 30% reporting problems washing and dressing.
  • 60% reporting problems sleeping.
  • 73% of patients reporting problems with everyday activities such as housework or family/leisure pursuits.
  • 44% exercising less because of their pain.

Patients also highlight increasing challenges associated with childcare, with 53% reporting difficulties in looking after children at the end of the research compared to 47% at the beginning.

The survey reveals that pain has a significant impact on patients’ ability to work: 65% worry that their pain will mean they have to stop work completely, 38% claim they have had to change the way they work and 33% have had to reduce the hours they work.

The emotional impact of pain

The emotional impact of pain is just as detrimental as its physical impact. Across the year, 44% of patients report feeling alone in tackling their pain and two-thirds of patients feel anxious or depressed as a result of their pain. For 28% of patients, their pain is so bad that they sometimes want to die. Patients report feeling trapped by a pain which may vary in intensity, but continuously affects every aspect of their life.

Results also highlight the impact that pain has on relationships with others. One-third of patients think people treat them differently and said they have fewer friends as a result of their pain.